tag:blogger.com,1999:blog-2420331684625962066.post2201207939829211397..comments2024-03-02T12:11:23.602+00:00Comments on float knowledge return wisdom;: Living the labelysabethttp://www.blogger.com/profile/00488082397693052250noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-2420331684625962066.post-89757299556873115252011-06-09T00:02:22.132+01:002011-06-09T00:02:22.132+01:00Looking at idiopathic hypersomnia, it seems that I...Looking at idiopathic hypersomnia, it seems that I have experienced all the same symptoms except cataplexy and I am diagnosed with Chronic Fatigue Syndrome. I have had Chronic Fatigue Syndrome since age 12. Who diagnosed you?_https://www.blogger.com/profile/17662577636835071820noreply@blogger.comtag:blogger.com,1999:blog-2420331684625962066.post-44404861518188964252011-06-09T00:00:58.147+01:002011-06-09T00:00:58.147+01:00This comment has been removed by the author._https://www.blogger.com/profile/17662577636835071820noreply@blogger.comtag:blogger.com,1999:blog-2420331684625962066.post-19125971968852763662011-05-12T03:55:06.618+01:002011-05-12T03:55:06.618+01:00*sigh* Wrote a really long reply, Blogger chewed i...*sigh* Wrote a really long reply, Blogger chewed it. I really don't have time to write it again, so going to have to summarise.<br /><br />What Lionell said. Also, medical breakthroughs pop up in unexpected places - perhaps a project researching something else will find an anomaly that will eventually help you.<br /><br />Most importantly, I don't think this will impact the friendships that matter most. Those of us who love you accept you as you are, and this is now part of you. When you're late because you slept in, when you have to leave early because you're too tired, when you have to cancel without notice because you can't face an evening out ... that's OK. It will never cause me to think any less of you. If anything, it means even more when we see each other because I know how you have to struggle to make it happen. I'll love you just the same if all you can spare me is ten minutes a month via IM.<br /><br />As for your career, as frustrating as it is to be held in a cage that makes it damn hard to work, don't fret about it too much. I would suggest going freelance or working for yourself, or perhaps volunteering as you can. All are potentially sustainable and satisfying options that allow you to be yourself. I think the hardest part, but the key, is to accept that this is the "new you". Just as you had to come to terms with ASD and ditching dairy, this is a part of you now. And you WILL make it work, just like you always have, because you're you - too damn stubborn to not make it work. ;)Sarahhttp://sbw.livejournal.comnoreply@blogger.comtag:blogger.com,1999:blog-2420331684625962066.post-68295302612661424902011-05-11T12:40:08.662+01:002011-05-11T12:40:08.662+01:00You partied hard with us at my 30th, 'til the ...You partied hard with us at my 30th, 'til the early hours. I guess you live for the times it works, and try to get through the times it doesn't.<br /><br />I bet, by the time you're 50, you'll have lots of little coping strategies that you haven't worked out yet.Lionell Packhttps://www.blogger.com/profile/06653836324205060962noreply@blogger.com